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16:44 NICE, FR
Thursday, 15.09.22

Rewriting the Rules When the Rules Change

Suzie was diagnosed with Stargardt's Disease at 14, a degenerative eye condition that would slowly steal her central vision. Rather than accept the limitations doctors predicted, she built a thriving business, raised two sons, navigated London's Underground system, and cycled 750 kilometres from Paris to Nice on a tandem bike. Today, she shows organisations how to turn obstacles into opportunities and why asking for help is the ultimate strength.

[ About ]

The Doctor Who Shouted

The doctor was shouting at her. Suzie was 11 years old, with thick pink glasses sitting in his consulting room in Kilkenny and this Dublin specialist was accusing her of making it all up. Just looking for attention, he said.

She burst into tears, but not because she believed him. She was furious that an expert in a position of authority could be so wrong, so cruel and so absolutely certain of himself.

That moment taught Suzie something that would shape the rest of her life: not everyone will help you reach your goals, but that doesn't mean you stop trying.

A Name for What Was Wrong

Three years later, a different doctor, Peter Tormey in Waterford, finally gave Suzie’s condition a name: Stargardt's Disease. A rare inherited condition that creates a cloudy blind spot in the centre of her vision.

The prognosis? Suzie’s sight would continue to worsen throughout her life. She would never drive. Reading would become impossible. Large objects everyone else could spot would disappear before she knew they were there.

She was 14. Suzie had a choice: let her world shrink with her vision, or expand it in ways no one expected.

Building a Life, Not Making Excuses

Suzie chose expansion. After graduating with honours in Marketing and French, Suzie landed prestigious roles with Brown Thomas and Elizabeth Arden in London. She mastered the London Underground by memorising exactly where to stand on platforms and which stairs to take.

Her future husband would test her by removing his jacket on the bus, watching her search for him whilst he giggled. She learned to laugh too.

Returning to Ireland, she launched Bella Mamma, a revolutionary maternity fashion boutique that became the go-to destination for stylish Irish mothers-to-be. She travelled to New York, London and Milan on buying trips, her keen eye for fashion and photographic memory allowing her to build cohesive collections even as her diminishing eyesight made reading order forms very difficult. Revenue hit €750,000. Suzie and her husband Aengus had two kids during this time, two gorgeous sons, Ben & Jamie.

Suzie was thriving, until the day she fell into the pond in St Stephen's Green during a rainstorm, her vision was so compromised she hadn't seen the water until she was waist-deep in it. Soaked, angry and humiliated, she climbed out alone whilst people walked past.

The Guide Dog and the Revolution

That's when she got Jonah, a gorgeous guide dog with a corkscrew tail and a terrible snoring problem. Jonah gave her back her independence and taught her the power of accepting help.

To say thank you, she organised a fundraiser: she'd cycle 750 kilometres from Paris to Nice on a tandem bike, then host a charity lunch at Restaurant Patrick Guilbaud.

These events raised €27,000 for Irish Guide Dogs for the Blind. More importantly, it proved what she'd always known: the only real limitations are the ones we accept.

Today, Suzie continues to cycle with the friends she made in 2021. Her guide dog Jonah has had to retire and her 2nd guide dog Winston is now helping her attend her speaking events.

Map of the London Underground transit system with colored lines and station names.
A woman with curly hair sitting on a couch, wearing a dress with a raised leg, surrounded by text and large letters that say "Yummy Mummy."
A woman with blonde curly hair in an orange dress standing against a dark patterned background with her hand on her hip, posing confidently.
Group of Paris2Nice cyclists celebrating at a charity event, holding signs with donation amounts, in front of a colourful jungle-themed background. October 2022
A woman sitting on wooden steps with a tired-looking Labrador Retriever lying next to her. The woman has shoulder-length blonde hair and is wearing a green and black patterned top and white sneakers. The dog is wearing a harness and is lying on its side with its head resting on the woman's lap, in front of a white door with glass panes.
A woman with a yellow Labrador retriever puppy sitting on green grass near a river, with trees and a blue sky in the background.
A woman in cycling gear and a helmet standing next to a large sign that reads 'Paris2Nice 2021 Irish Guide Dogs for the Blind' with a logo of a person walking a guide dog, outdoors in a lively, decorated area.

"As the Regional Development Officer here at Irish Guide Dogs for the Blind, it has been my absolute pleasure to work with Suzie, as one of our incredible Guide Dog Owners for the past 5 years. Suzie has supported at various different events where she has spoken beautifully and really helped audiences view life differently through the eyes of someone who has a visual impairment, and how determination and fun, can help you over come challenges in life.

Suzie is a wonderful person, who is beyond inspiring, this combined with Suzie’s warm personality, amazing story telling ability and great sense of humour makes her a powerful speaker, who can leave people with sore jaws from laughing, or have people really contemplate life differently from a new fresh perspective. Suzie has a wonderful attitude to life, her positivity is infectious and she is definitely a lady I look up to as an inspiration, and I cannot recommend her enough as an inspirational speaker at your event!

Most recently Suzie spoke at a Golf Event, which raised over €80,000 for charity, undoubtedly it was Suzie’s words that had a powerful effect on people and made this fundraiser a spectacular success."


Jennifer Nora Hurley – Regional Development Officer Irish Guide Dogs for the Blind

Ready to Bring Suzie's Story to Your Event?

Suzie tailors each presentation to your organisation's specific challenges and goals. Whether you're navigating major change, building more inclusive teams, or helping your people develop resilience, her message resonates.

What to expect:

  • Customised content based on your objectives

  • Engaging storytelling with practical takeaways

  • Humour, honesty and hope in equal measure

  • Q&A session (optional)

Speaking fees and availability upon request.

Group of six women in cycling gear and helmets taking a selfie on a grassy area with bushes and trees in the background.

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